Living with lymphedema or lipedema is more than just wearing compression garments. It also means changing eating behaviors, exercising and moving more regularly, and meeting with healthcare professionals to create a treatment plan. And this is not an exclusive list. From one day to the next you have to manage all these new things while continuing with the activities and responsibilities that existed in your daily life before your diagnosis. You might frequently feel overwhelmed and not in the mood for socializing.
How to Maintain Friendships
There are different ways to deal with the diagnosis of lymphedema or lipedema. While some days you may appreciate someone’s comments or questions about your compression garments, at other times these may trigger negative emotions. Still, questions are bound to come up, and being prepared for them may help navigating these situations a bit easier: You can decide how in-depth to make your reply and you can, of course, simply say that you don’t want to talk about it at that time and move the conversation on. You can decide whether to be an ambassador and raise awareness of lymphedema or lipedema, or you might simply refer friends to a website or blog you like. Ultimately, the way you deal with your situation is entirely up to you. There’s no right or wrong way to behave, and you should do whatever makes you feel most comfortable.
How to Build New Relationships
We are all human beings and, as such, we need social interaction. So, even if your first reaction after being diagnosed is to hide from the world, you should try to step outside again. Connecting with people who are in a similar situation can be a good way to boost your confidence again. A platform like LymphCare allows you to talk about your experiences, thoughts, and fears with people who are going through a similar situation or have been managing the same condition for longer. Keep in mind that your mental health is equally important to your overall wellbeing as your physical health. Meaningful friendships are an important part of robust mental health and connecting with people facing similar challenges can have an incredibly positive impact.
How to Get Started
First of all, think about what you are in the mood for. Do you feel more confident talking about your situation with your family and friends? Or are you looking forward to connecting with new people in a similar situation? No matter what, here are some tips about how to maintain or build new relationships when living with lymphedema or lipedema:
- Strengthen your existing network, or even expand it by reconnecting with old friends or classmates
- Connect with new people from social networks or platforms to share your stories and get advice
- Find others to support your treatment. For example, people who will join you in exercising or taking walks in the nature, or who like cooking healthy meals
What is your lymphedema or lipedema story? How did you manage to cope with such a new situation? Help others benefit from your experience by sharing it on LymphCare.
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Get Support From Others With Your Condition
It’s important to know you’re not alone. Join our private community and feel empowered by connecting with other lymphedema or lipedema patients.
Don’t sit around and go through this in silence. Share your story. Doing that was a real eye-opener for me
Claudia Lymphedema patient