The first Lymphedema Awareness Day took place in October 1994 and was founded by the National Lymphedema Network in the United States. Lymphedema patients who made significant contributions to their communities were honored on this special day. Since then, Lymphedema Awareness Day has become a global campaign to underscore the importance of early intervention, regular monitoring, physical activity, and compression therapy as the cornerstones of better outcomes. The British Lymphology Society even dedicates the whole week to this topic, and the Australasian Lymphology Association initiated a Lymphedema Awareness Month.
Lymphedema in Children
Whereas awareness of lymphedema in adults is increasing, lymphedema in children remains a rare and poorly-recognized condition.1 Most children suffer from primary lymphedema caused by the abnormal development of the lymphatic system. Lymphedema can also be associated with syndromes that affect other organ systems.2 This is different from lymphedema in adults, where secondary causes due to cancer, trauma, infections, obesity, or others are the main reasons for lymphedema. Although the basic treatment is similar for children and adults, the disease also significantly impacts parents.1 This requires special treatment, meaning that the whole family is involved in the assessment, diagnosis, and treatment planning.
The Specific Needs of Children and Their Parents
Parents play an essential role in helping their child to manage lymphedema. This doesn’t only include making sure they’re wearing their compression garments, keeping up with their daily routine, eating well, and exercising—psychological support is also important. Because of the chronic nature of lymphedema, parents must prepare their children for a lifetime of management while also guiding them towards a fulfilling and enjoyable life. Though it requires maintenance and monitoring, lymphedema need not cause limitations.
Build Awareness for Lymphedema in Children
Join us to raise global recognition of lymphedema and lymphatic diseases. Take the opportunity to inform your family and friends that these diseases affect adults and children. Do you have any ideas for this important day? Share your ideas and thoughts with the LymphCare community here.
1 Moffatt C, Aubeeluck A, Stasi E, Bartoletti R, Aussenac C, Roccatello D, Quere I. A Study to Explore the Parental Impact and Challenges of Self-Management in Children and Adolescents Suffering with Lymphedema. Lymphat Res Biol. 2019 Apr;17(2):245-252.
You also might like
Yoga - Harmony for Body and Mind
In recent years, yoga has become increasingly popular in western countries. New yoga studios open every day, and many online classes are available. Practicing yoga has also become part of a healthy and mindful lifestyle. For most people, yoga is a synonym for physical exercise, but it’s so much more than that.
June Is Lipedema Awareness Month
June has been designated as Lipedema Awareness Month, which gives us the chance to raise awareness and make lipedema a global priority. Medical societies, companies, and patient organizations in several countries will be launching campaigns to educate patients, their families and friends, and healthcare professionals about this condition.
Diagnosis Lipedema - What to Expect
Diagnosing lipedema can be challenging for healthcare professionals. Although awareness of lipedema is increasing, it is often mistaken for obesity or lymphedema. Many lipedema patients report countless visits to different healthcare professionals before the correct diagnosis is made. Were you recently diagnosed with lipedema? Then hopefully this article will help you understand what that means and what to expect in the upcoming weeks and months.
Dating With Lymphedema or Lipedema
After more than two years of social distancing, you’re probably looking forward to getting out into the world again. Whether that’s meeting up with friends or family you’ve not seen for a long time or, perhaps, you’re thinking about going on a physical date; a dinner, rather than meeting for a virtual coffee? For many of us, this is something we may no longer be used to and, if you have lymphedema or lipedema, the prospect of an upcoming date comes with additional challenges.
Choose the Support You Need
Discover Our Services and Get the Help You Need
Don’t sit around and go through this in silence. Share your story. Doing that was a real eye-opener for me
Claudia Lymphedema patient