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Managing Lipedema as a Young Adult

Lipedema affects every woman differently. But when you are diagnosed with lipedema at a very young age, things can be even more challenging. Here we explain how lipedema is associated with genetics and hormonal changes, as well as how your family can support you in managing your disease.

Managing Lipedema as a Young Adult

Lipedema and Genetics

It’s still not quite clear why and how lipedema develops. However, many lipedema patients report a positive family history. This means that if your mother or other female relatives are also affected by lipedema, your situation is a very common one. Genetics are likely to play a role in the development of lipedema. However, research on the exact mechanism of why and how lipedema develops is still ongoing.

Hormonal Changes and the Onset of Lipedema

No matter when the first lipedema symptoms occur, they usually coincide with weight gain and hormonal changes. These can be related to puberty or starting to take birth control pills, as was likely the case in your situation. But it can also affect pregnant or menopausal women. 

Challenges with Lipedema

Living with lipedema can be difficult, but it’s a particular challenge for young adults. Social media promotes the beauty ideal of slim legs and a trained body. It can be difficult not to feel unsettled by this. If your mother is also affected by lipedema, you may fear that your own children could develop lipedema in the future. All this makes it so important to get support from your family, friends, a community, and an experienced team of healthcare professionals. 

Manage Your Lipedema Together

Every woman’s lipedema journey is different, so everyone’s struggles are different too. Therefore, it’s slightly challenging to say that what works well for one person will also work for you. The good news is that you can benefit from the experiences of others to help you learn how to live your best life, with lipedema. 

Take advantage of your relative’s knowledge and experience when you get your first compression garment, or consult your healthcare professional. You could also consider exercising or cooking together. Although lipedema is considered to be a rare disease, there is a great and supportive community of lipedema patients. Have a look at our Starting Program on LymphCare for more information.

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Claudia Lymphedema patient

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