Lipedema and Genetics
It’s still not quite clear why and how lipedema develops. However, many lipedema patients report a positive family history. This means that if your mother or other female relatives are also affected by lipedema, your situation is a very common one. Genetics are likely to play a role in the development of lipedema. However, research on the exact mechanism of why and how lipedema develops is still ongoing.
Hormonal Changes and the Onset of Lipedema
No matter when the first lipedema symptoms occur, they usually coincide with weight gain and hormonal changes. These can be related to puberty or starting to take birth control pills, as was likely the case in your situation. But it can also affect pregnant or menopausal women.
Challenges with Lipedema
Living with lipedema can be difficult, but it’s a particular challenge for young adults. Social media promotes the beauty ideal of slim legs and a trained body. It can be difficult not to feel unsettled by this. If your mother is also affected by lipedema, you may fear that your own children could develop lipedema in the future. All this makes it so important to get support from your family, friends, a community, and an experienced team of healthcare professionals.
Manage Your Lipedema Together
Every woman’s lipedema journey is different, so everyone’s struggles are different too. Therefore, it’s slightly challenging to say that what works well for one person will also work for you. The good news is that you can benefit from the experiences of others to help you learn how to live your best life, with lipedema.
Take advantage of your relative’s knowledge and experience when you get your first compression garment, or consult your healthcare professional. You could also consider exercising or cooking together. Although lipedema is considered to be a rare disease, there is a great and supportive community of lipedema patients. Have a look at our Starting Program on LymphCare for more information.
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In recent years, yoga has become increasingly popular in western countries. New yoga studios open every day, and many online classes are available. Practicing yoga has also become part of a healthy and mindful lifestyle. For most people, yoga is a synonym for physical exercise, but it’s so much more than that.
June Is Lipedema Awareness Month
June has been designated as Lipedema Awareness Month, which gives us the chance to raise awareness and make lipedema a global priority. Medical societies, companies, and patient organizations in several countries will be launching campaigns to educate patients, their families and friends, and healthcare professionals about this condition.
Diagnosis Lipedema - What to Expect
Diagnosing lipedema can be challenging for healthcare professionals. Although awareness of lipedema is increasing, it is often mistaken for obesity or lymphedema. Many lipedema patients report countless visits to different healthcare professionals before the correct diagnosis is made. Were you recently diagnosed with lipedema? Then hopefully this article will help you understand what that means and what to expect in the upcoming weeks and months.
Dating With Lymphedema or Lipedema
After more than two years of social distancing, you’re probably looking forward to getting out into the world again. Whether that’s meeting up with friends or family you’ve not seen for a long time or, perhaps, you’re thinking about going on a physical date; a dinner, rather than meeting for a virtual coffee? For many of us, this is something we may no longer be used to and, if you have lymphedema or lipedema, the prospect of an upcoming date comes with additional challenges.
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Claudia Lymphedema patient