Lipedema Awareness Month's mission is to provide resources, raise awareness, educate and create a more open conversation around the condition. Frequently, lipedema is still not taken seriously or is mistaken for obesity or lymphedema. That's why many patients have a long and often challenging journey to a correct diagnosis and holistic treatment. Giving patients and healthcare professionals the chance to share experience and knowledge lays the groundwork for a more open-minded and unbiased approach to the topic. Some campaigns also support research initiatives to fill the gaps in understanding the causes of lipedema. If you want to know how JOBST supports Lipedema Awareness Month, you'll find more information here.
How Can Research Improve Lipedema Management?
In 1940, Dr. Edgar Hines and Dr. Edgar Allen, both physicians at the Mayo Clinic in the United States, were the first to describe lipedema. In the decades immediately after this, not much research was done on the condition. This situation has significantly changed within the last few years. Recently, a group of healthcare professionals from different disciplines and European countries agreed on a consensus document about lipedema that cleared up several mis-understandings or 'myths' about the condition.1 The current understanding of the condition is also reflected in a patient fact sheet, which has been created by the newly founded International Lipedema Association (ILA) that you can download in several languages.2 Still, more research activities are needed to further improve patient care.
What Can You Do To Raise Awareness?
While researchers and healthcare professionals gain more insight into the causes of lipedema and improve treatment strategies, how can we contribute? Join us in raising global recognition of lipedema. Take the opportunity to inform your family and friends that this condition affects more women than most people think. If you want to improve your understanding and knowledge of lipedema, you can find more information here. Do you have any ideas for this important month? Share your ideas and thoughts with the LymphCare community here.
1 Bertsch T, Erbacher G, Elwell R. Lipoedema: a paradigm shift and consensus. J Wound Care. 2020 Nov 1;29(Sup11b):1-51. doi: 10.12968/jowc.2020.29.Sup11b.1.
You also might like
Diagnosis Lipedema - What to Expect
Diagnosing lipedema can be challenging for healthcare professionals. Although awareness of lipedema is increasing, it is often mistaken for obesity or lymphedema. Many lipedema patients report countless visits to different healthcare professionals before the correct diagnosis is made. Were you recently diagnosed with lipedema? Then hopefully this article will help you understand what that means and what to expect in the upcoming weeks and months.
Yoga - Harmony for Body and Mind
In recent years, yoga has become increasingly popular in western countries. New yoga studios open every day, and many online classes are available. Practicing yoga has also become part of a healthy and mindful lifestyle. For most people, yoga is a synonym for physical exercise, but it’s so much more than that.
Maximizing Comfort with Lymphedema and Lipedema
Being diagnosed with lymphedema or lipedema brings significant changes to your daily life. It takes time to cope with the diagnosis, and to become accustomed to regular exercise, weight management and other new routines. Not to mention wearing compression garments every day. This article aims to share how you can maximize comfort while managing lymphedema or lipedema.
Diagnosis Lipedema - How to Find an Expert
Specialized healthcare professionals are usually required to confirm the diagnosis of lipedema. Coordinating appointments with different healthcare professionals, finding compression garments that are comfortable and fit well - all together, it can be overwhelming. But managing your condition is easier with the right professional support at your side. In this article, we want to offer some guidance on finding experts to support your treatment after your diagnosis has been made.
Choose the Support You Need
Discover Our Services and Get the Help You Need
Don’t sit around and go through this in silence. Share your story. Doing that was a real eye-opener for me
Claudia Lymphedema patient