June Is Lipedema Awareness Month

The Campaign

Lipedema Awareness Month's mission is to provide resources, raise awareness, educate and create a more open conversation around the condition. Frequently, lipedema is still not taken seriously or is mistaken for obesity or lymphedema. That's why many patients have a long and often challenging journey to a correct diagnosis and holistic treatment. Giving patients and healthcare professionals the chance to share experience and knowledge lays the groundwork for a more open-minded and unbiased approach to the topic. Some campaigns also support research initiatives to fill the gaps in understanding the causes of lipedema. If you want to know how JOBST supports Lipedema Awareness Month, you'll find more information here.

How Can Research Improve Lipedema Management?

In 1940, Dr. Edgar Hines and Dr. Edgar Allen, both physicians at the Mayo Clinic in the United States, were the first to describe lipedema. In the decades immediately after this, not much research was done on the condition. This situation has significantly changed within the last few years. Recently, a group of healthcare professionals from different disciplines and European countries agreed on a consensus document about lipedema that cleared up several mis-understandings or 'myths' about the condition.¹The current understanding of the condition is also reflected in a patient fact sheet, which has been created by the newly founded International Lipedema Association (ILA) that you can download in several languages.² Still, more research activities are needed to further improve patient care.

What Can You Do To Raise Awareness?

While researchers and healthcare professionals gain more insight into the causes of lipedema and improve treatment strategies, how can we contribute? Join us in raising global recognition of lipedema. Take the opportunity to inform your family and friends that this condition affects more women than most people think. If you want to improve your understanding and knowledge of lipedema, you can find more information here. Do you have any ideas for this important month? Share your ideas and thoughts with the LymphCare community here.

¹Bertsch T, Erbacher G, Elwell R. Lipoedema: a paradigm shift and consensus. J Wound Care. 2020 Nov 1;29(Sup11b):1-51. doi: 10.12968/jowc.2020.29.Sup11b.1.

²https://theila.net/ressources/fact-sheet

You also might like

Diagnosis Lipedema - What to Expect

Diagnosing lipedema can be challenging for healthcare professionals. Although awareness of lipedema is increasing, it is often mistaken for obesity or lymphedema. Many lipedema patients report countless visits to different healthcare professionals before the correct diagnosis is made. Were you recently diagnosed with lipedema? Then hopefully this article will help you understand what that means and what to expect in the upcoming weeks and months.

Do I Need a Compression Sleeve after Breast Cancer Treatment?

One of the most common questions from clinicians and patients is whether a compression sleeve is needed immediately after treatment for breast cancer. 

Pediatric Lymphedema - Brylan’s Feat and Camp Watchme

We wanted to share with you a fantastic organization that helps children all around the world to find treatment and assistance to get the help they need.